Patients & Caregivers
Patients are our North Star
AviadoBio is developing treatments for people and families living with neurodegenerative diseases. Built on deep neuroscience expertise, AviadoBio is developing targeted, one-time gene therapies to precisely deliver genetic medicines to disease-relevant cells and pathways within the nervous system, restoring function and hope through advanced science.
AviadoBio policy on expanded access to investigational therapies
Our proprietary platforms, including intrathalamic, intravitreal, and blood-brain barrier (BBB)-penetrant delivery approaches, as well as the vMiX™ RNA silencing system, enable precise, durable therapeutic expression across complex neural systems such as the brain and retina. AviadoBio’s clinical and preclinical pipeline spans frontotemporal dementia (FTD), amyotrophic lateral sclerosis (ALS), inherited retinal diseases, and tauopathies, including Alzheimer’s disease.
AviadoBio policy on expanded access to investigational therapies
Caregiver Stories from the FTD Journey
Hear directly from family members of people affected by frontotemporal dementia (FTD) and learn more about their experiences from receiving a diagnosis through the progression of their loved one’s dementia.
KATIE: DEMENTIA CARE EXPERT, ADVOCATE, AND EDUCATOR
Katie became a caregiver when her husband was diagnosed with FTD at the young age of 29. Learn more about Katie’s experience supporting her husband through his FTD diagnosis while raising a toddler and her dedication to driving awareness and supporting families impacted by this devastating neurodegenerative disease.
Jacquelyn: A daughter’s FTD story
Jacquelyn’s mother’s FTD symptoms began as early as 2013, starting with insomnia, memory loss, and differences in her usual behavior. Hear from Jacquelyn as she recounts her mother’s FTD journey and how their family is navigating this devastating disease together.
Tanya: A wife’s FTD story
Tanya’s husband was a beloved partner, father, and high school history teacher, who ultimately passed away five years after his FTD diagnosis. Learn more about his FTD diagnosis, Tanya’s role as his caregiver, and her mission to raise awareness of FTD.
“It’s heartbreaking to see how fast neurodegenerative diseases, such as ALS and FTD, change the lives of patients, families and caregivers. At AviadoBio, we listen intently to this community and know their input into our work is invaluable. We extend this same compassionate approach to those we work with so everyone can collaborate by sharing their ideas and offering creative solutions.”
Farah Speer
SVP, Communications and External Relations
Farah Speer
SVP, Communications and External Relations
FRONTOTEMPORAL DEMENTIA
Frontotemporal dementia (FTD) is a devastating form of early-onset dementia and is characterized by a rapid decline in executive function, behavior and/or language, and typically leads to death within seven to 13 years of symptom onset and three to 10 years from diagnosis.
AMYOTROPHIC LATERAL SCLEROSIS
Retinitis Pigmentosa
Retinitis Pigmentosa (RP) is a leading cause of visual disability and blindness, affecting over 1.5 million people worldwide. Progressive symptoms include night blindness, reduction in peripheral and central vision, commonly called “tunnel vision,” and reduced ability to see details and colors.
